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WITH DEMENTIA – THE WAY FORWARD

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NURSING PEOPLE

WITH DEMENTIA – THE WAY FORWARD

Bahagia Zakaria

(2)

TOPIC OVERVIEW

DEFINITION

SYMPTOMS

UNDERSTANDING SYMPTOMS

NURSING PRINCIPLE

(3)

DEFINITION

Dementia is a syndrome in which there is deterioration in memory, thinking, behaviour and the ability to perform everyday activities.

Alzheimer's disease is the most common cause of dementia and may contribute to 60–70% of cases

(4)

Common Cause of Dementia

(5)

SYMPTOMS

Memory Loss Short-Term Long-Term

Communication (dysphasia/aphasia) Vocabulary shrinking

Unable find the right word

Difficult to understand what is said

Dyspraxia/Apraxia

Difficulty in carrying out with sequencing or daily activity

(6)

SYMPTOMS

Concentration

Difficulty to concentrate for periods of time

Recognition

Difficulty to recognize familiar people, objects, sight, places, sounds

Orientation

Difficulty with finding ways, time, date etc

Perception

Misinterpreting or misjudging things or seeing things that is not there

Psychological Changes

Irritable, withdrawn or depressed

(7)

UNDERSTANDING THE SYMPTOMS

(8)

IMAGINE….

“I wake every morning and see unfamiliar

faces, voices and places. I hate the fact that I can’t tell people that I do not want have shower early in the morning. I feel so irritable as my

knees are aching most of the times. The people

around me do not understand me and accusing

me to be difficult and cranky…”

(9)

DEMENTIA PATIENT MAY FEEL

DEMENTIA

Miserable In pain

Unwell Medication

Effect

Frustrated Unable to communicate

Worried Health Problem

Scared Too Noisy Background

Confused People speaking too

quickly Uncomfortable

Light too glary Feeling Lost

Unfamiliar people and environment

(10)

NURSING PRINCIPLE

SKILLED, SUFFICIENT STAFFING

PARTNERSHIP WITH FAMILY CARERS

ASSESSMENT AND EARLY IDENTIFICATION

PERSON- CENTRED CARE/INDIVIDUALISED CARE

ENVIRONMENT FRIENDLY

(11)

Skilled, Sufficient Staffs

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SKILLED, SUFFICIENT STAFFS

Registered Nurse

Diploma or Degree of Nursing

Post Basic In Gerontology Nursing

Nurse Practitioner in Dementia Care

Carer

Certificate in Aged Care

Personal Care Assistant/Nursing Aides

(14)

SKILLED, SUFFICIENT STAFFS

Diversional Therapist

Certificate in Health and Leisure

18 months ( or longer)

Diversional Therapy recognizes that leisure and

recreational experiences are the right of all individuals

Diversional Therapists promote the involvement in

leisure, recreation and play by reducing barriers to their client's participation and providing opportunities where the individual may choose to participate

(15)

SKILLED, SUFFICIENT STAFF

Resident 1

Name : Mr X

Age : 84 years

Gender : Male

Diagnosis : NIDDM, HPT, CCF, Dementia with Wandering Behaviour and Hallucination, Urine and Faecal

Incontinence

Mobility : Walks with walking Aids

(16)

SKILLED, SUFFICIENT STAFF

Resident 2

Name : Mrs Y

Age : 87 years

Gender : Female

Diagnosis : Fracture neck of femur, DHS done – 1/52 ago, OA both knee, Dementia, Depression, Urine and Faecal Incontinence

Mobility : Immobile

(17)

SKILLED, SUFFICIENT STAFF

Why?

Accurate assessment

To support complex needs and numbers of residents

Good understanding of condition

Good Communication

Well-being and better quality of life

Prevent staffs burnouts

(18)

SKILLED, SUFFICIENT STAFF

How many is sufficient?

Depends on

Number of residents

complexity of care ( ADL, Health Complex and behaviour)

Staff : Resident Ratio in Private Health Care Act 2006 for Geriatrics Care 1 : 4 with 40% Registered Nurse

(19)

SKILLED, SUFFICIENT STAFF

Important to Remember

Organization Philosophy Of Care/ Vision And Mission Statement

WHAT IS YOUR ORGANIZATION PHILOSOPHY OF CARE?

DOES YOUR CURRENT STAFFING STATUS MOVING FORWARD TO ACHIEVE THE PHILOSOPHY?

(20)

TRAINING AVAILABLE

Post Basic / Professional Certificate in Gerontology Nursing

Duration : 6 months

Institution : Ministry of Health & KPJ University College

Care Assistant : 4 months ( General )

Institution : KPJ University College , JB Branch/

Private Nursing College

Courses and Seminar on Dementia Care : Various Organization

Upcoming Course :

Certificate of Aged Care ( Carer) Duration : 3 months

Institution : KPJ University College, Nilai

(21)

PARTNERSHIP WITH FAMILY CARERS

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PARTNERSHIP WITH FAMILY CARER

Carers provide us :

Background Information to help solve problem

Histories, routines, stories, interests

Previous routines and hints for personal care

Consent for treatment / management

Carers require:

Emotional support

Open communication

Be involved in patient care

Information on care, services throughout the organization

Recognize their expertise

(23)

PARTNERSHIP WITH FAMILY CARER

Why Partnership with family carers is important?

Assist to achieve our mission or philosophy of care

How?

Sharing what they have learned through their experience of caring

(24)

ASSESSMENT & EARLY

IDENTIFICATION

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ASSESSMENT AND EARLY IDENTIFICATION

Fundamental to good care

To be performed by skilled, knowledgeable practitioner To ensure appropriate care and treatment

(26)

ASSESSMENT AND EARLY IDENTIFICATION

Assessment Tool usually comprises of :

Routine blood investigation

Midstream Urine if delirium if suspected

Cognitive assessment :

Attention and concentration

Orientation

Short and long-term memory

Language

Executive function

(27)

Common Assessment Tool

Mini Mental State Examination ( MMSE)

Montreal Cognitive Assessment

(28)

PERSON-CENTRED CARE

(29)
(30)

PERSON-CENTRED CARE

An individual care or person centred approach

Appreciate the uniqueness of dementia patient

Improve quality of life

Try to understand dementia patient and issue matters to them

Treat the person not the disease

(31)

PERSON-CENTRED CARE

- CENTRE

- ACCEPT - RESPECT - ENABLE

C

A

R

E

(32)

CENTRE

Centre on the person

Explore :

Retained ability and skills

Culture

Relationship

Health

Likes and Dislikes

Disability

Tailor care accordingly

Consider cultural and belief

(33)

ABOUT MY SELF AND HOW I WISH TO BE TREATED

40, Malay, Muslim

Married, 3 children

Food Picky

Loves to sleep in dark room Does not believe

in superstition Loves Red

Colour Go to bed late,

late riser Does not like many visitors

Loves reading

Dislikes watching TV

(34)

ACCEPT

Frontal Lobe

Planning, organizing, judging, initiating, insight Parietal Lobe

Pattern( Putting steps together to complete task),communication, Spatial awareness

Temporal Lobe

Filing System, Memory Limbic System

Sleep, Appetite, Emotion

DECLINING BRAIN FUNCTION

(35)

ACCEPT

Accept Patient disabilities

Accept that what ever they do is undeliberate

Do not take what they say or do personally

What work to one person may not work for another

Spend time to solve problem

(36)

DOES THE SAME TREATMENT WORK

FOR BOTH OF THEM?

(37)

RESPECT

Treat patient as an adult

Treat patient not the disease

Be patient, flexible and creative

Maintain dignity

Involve patient in meaningful and purposeful activity

(38)

ENABLE

Maintain skills, ability, dignity and self-esteem

Maintain safety and feeling of security

(39)

ENVIRONMENTAL FRIENDLY

(40)

ENVIRONMENT FRIENDLY

Minimal movement between ward

To reduce stress due to unfamiliar environment

Appropriate flooring

Less glaring surface

Adequate lighting

Less glary

Evenly illuminated

Easy to navigate facility

Lighting, personalized room, adequate illuminated eye level signage

(41)

ENVIRONMENT FRIENDLY

Familiar/Personalised Bed Area

Allow personal familiar item e.g. photo, bedding, small furniture, books

Space to support activity and stimulation

Quiet Room, Activity room

Family Area

Family visit and activity

(42)

ENVIRONMENT FRIENDLY

Dementia with Wandering Behaviour

Closed and secured area e.g. locked spacious area with combination lock system

Spacious indoor area

(43)

ENVIRONMENT IS NOT MERELY BRICKS AND MORTAR

Tailored to suit need

Eye level signage

Turn on toilet light at night

Open toilet door

Reduces stress/trigger

Minimal background noise

Play relaxing music

Create homely environment

Encourages activity to maintain skills and ability

Good staffs communication

Provides suitable facility

(44)

SENIOR LIVING CARE CENTRE

Another new venture by KPJ Healthcare Berhad

Latest expansion of Tawakkal Health Centre

Concept of Care :

Provides comprehensive treatment by Medical, Nursing and other Healthcare Professionals and Providers for elderly.

The facility will adopt as much as possible homelike

environment i.e. providing home like bed with resident’s choice of deco and momentos with opportunity to

healthy socialization and recreational activities

No of : 45 beds

Target of Date of Operation : 1st Quarter of 2014

(45)

THANK YOU

Rujukan

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